Still at the hospital with my little guy. I think we made it through the latest crisis. I couldn’t write about it while it was happening because the words were too scary and real.
My boy had terrible tummy pain and was rolling and screaming and nonstop heaving even though his belly was empty hours ago.
Then he urinated pure blood. Later They said no urine was present in that sample for analysis. Pure blood. I gave the specimin cup to the nurse and managed not to pass out when I saw the panic on her face.
An xray showed nothing abnormal. An ultrasound showed distended kidneys and gall bladder and fluid surrounding his organs. They wanted a ct scan but he was unable to drink the dye without vomiting. He was still screaming in pain.
They gave him morphine and antinausea meds and he settled into a light sleep. Several hours passed like this with still calling out in pain and vomiting.
And then the worst night of our lives began. He was not producing urine yet so they gave him a foley catheter thinking the blood may have caused an obstruction. Another hour with no urine and he started to breathe heavily like he was congested. This quickly escalated into respiratory distress with full rails and belly breathing. Nurse grabbed pulse ox and he was at 73. 73! He needed oxygen NOW. Nurse called code something and opened an emergency box with oxygen mask similar to an airplane one. His ox level went to 80.
All at once his room was full: doctors, nurses, xray, respiratory therapists. Xray showed fluid filling his lungs. His kidneys had shut down and all the iv fluid needed to go somewhere else in his body and filled his lungs. He was literally drowning from the inside.
They gotva different ox mask that could deliver a higher percntage of oxygen. But he was struggling to breathe still. Hubby and i took turns sitting in his bed holding upright to keep his oxygen levels up. Laying downg made the fluid to hard to push against. It was time to go to the icu. Again.
At the icu i was warned he may need a breathing tube if he couldnt maintain oxygen. They were giving him pressurized air at 25 psi and 60% oxygen. He still dropped under 90 and wearing out. He could not keep that up and it was stressful on his heart. It was time for a breathing machine called bipap.
It was so scary. I kept leaving the room to cry. He was comfortable now and getting enough ox without working so hard. But the image of his tiny body so helpless and motionless with that huge mask strapped on his head. Hubby and i both cried at that sight.
Moving on more quickly, so you dont suffer with waiting like I did. His breathing improved, he started to urinate and was released from icu.
He is now breathing all on his own, they removed catheter, kidneys are functioning, and we are about to go walk the hospital halls for his first time walking this year.